After reading the last update, I’m sure you are all realizing, as we are, that Jack’s road is going to be a long and uncertain one, and that our family is going to need a lot of support. I feel comfortable posting this online, since legions of you have rushed forward to offer assistance. We have been humbled, truly, but the love that surrounds us. And yes, we are going to need your help. We may need your help, patience, and understanding for many years.
My dear friend Meghann has offered to create and manage a site for us which will allow us to schedule meal drop-offs a few nights a week for a while. I will post that link on the blog early next week when it is created. It will also allow me to communicate other things that we might need help with, like the occasional errand or grocery run. Since many of you would like to help in other ways, particularly those of you who are not local, it also has a spot for gift card suggestions. However, please note that while Jack is in the hospital with his needs being met, we are in pretty good shape just with meal help and the occasional errand. When Jack comes home and needs specialized care, we will need help again, and we don’t know yet what that might look like. Fundraising? Babysitting Sam? Meals? I just don’t know yet. It could be a lot of things.
As for visiting, right now, Jack is in such a delicate state that I really don’t want many people coming into his room. I’m so afraid of infection right now, given the high risks for pneumonia, blood infections (thanks to his drain) and worse, that I hope you all will understand why we haven’t rushed to embrace everyone’s offers to visit.
That said, it’s great to see familiar faces, so for those of you that are local, I think we will work out a way to have visits (at least with me and maybe John) at the hospital cafeteria, very soon. The food isn’t great, but it’s okay, and seeing all of you will keep us sane, and will keep Jack’s room germ-free. Stay tuned, more info coming early next week on that.
Did our lives’ journey put us in Delaware just so that Jack could be next to Nemours when this thing happened? Or was it because it allowed us to meet so many of you and have the amazing support that you have already given us? I don’t know, but we are a very, very lucky family. Thank you all.
UPDATE: My mom, Ruth, (Nana) wanted me to express also to our local friends how much she appreciates that everyone has rallied around her and Sam on the home front. Thank you for taking her under your wing and giving her a community in Delaware. Thank you to Mom’s Connecticut crew as well, for lifting her up with your constant support and words of encouragement.