I promise a longer update soon, but wanted to assure everyone that Jack is alright after his shunt surgery. Because Jack has been through so many more dangerous surgeries than this one, I completely underestimated the extent to which the shunt surgery would impact Jack. The shunt runs from a whole new incision on his left side, down his neck, under his collarbone, and then across his chest, ending on the right side of his belly. (This cross-chest move was done because Jack’s feeding tube is on the left.) Jack has been in a LOT of pain following the procedure. However, he is otherwise fine, and we are working on calibrating his pain meds appropriately to give him some relief. I have been tied up reading stories and singing songs and trying hard to keep jack calm and assured that someone who loves him is always nearby.
Hopefully there will be more to report soon. thanks for your patience everyone!