Bounce Back Jack benefit!

Word from Connecticut is that the Bounce Back Jack benefit was a smash success!  Supporters of our little man packed this whole place, a few hours after this picture was taken:

benefit2Hearing the names of the people who attended was like watching an episode of “this is your life”.  So many friends from so many wonderful years.  I so wish that I could have been there. (A note to readers- I would love to see some pictures of the event!  If you took any that you would be willing to share with the world, please consider posting them in the comment section.)   I think it is pretty certain that putting on the event took more effort, on a considerably shortened timeline, than planning a 300-person wedding.  Thanks to the brilliant Sue Gomes of LHHS and Amy Humphries of the WPL, as well as MANY other businesses and individuals, I’m sure everyone who attended has a wonderful night to remember.  We tremendously appreciate the financial assistance that the event generated for Jack.

Many people have been asking me to post the video that was shown at the event.  It can be accessed here, (password bouncebackjack).  While the words are mine, the film was created by one of my best friends, Jack’s Uncle Chad- photographer, author, and documentary filmmaker par excellence.  I hope you all like it.

Jack is doing well now that he is home.  He loves being able to go outside and roll around in his wheelchair/stroller (which Sam also loves to ride in), and to be a part of family dinners at night (though Mom and Dad do very little eating at dinner time these days).  He’s done reasonably well tolerating three therapy sessions a day in the Nemours COR program.  He’s tolerating tummy time much more, and he even used his arms and legs to “creep” around on a mat earlier this week, which he has not done since before the diagnosis.  We have plenty of reason to hope that the weakness in his neck and trunk will resolve itself with enough hard work on Jack’s part.  It’s pretty clear that an old friend (Sam) will have a key role to play here.  Jack is fascinated by Sam’s crawling and climbing.  He was motivated before… but it’s much more obvious now!

There is a lot more to report, and pictures to share, but that will have to wait for another day.  Thanks again for following along, everyone!


5 thoughts on “Bounce Back Jack benefit!

  1. Megan Oakleaf

    Just watched the video…

    So beautifully done, Meg! But my favorite part is Jack’s. 🙂 So wonderful to see him clapping and happy. Hooray!

  2. Dear beg. It is wonderful to hear how great jack is doing. We had a great time at the dinner. All the buongirno and kobrins were there with your mom and dad

    Sorry you could not come. There were four generations. Love to all.Jean k.

  3. Jill Gaffey

    Dear Meg, I love to hear about all of the new things that Jack is doing! It must be so wonderful for you and John to all be home together as a family again! Jack will benefit so much by being around Sam and trying to imitate him! Can’t wait to see them again! Love, Aunt Jill

  4. Sonya Wulff

    Dear Meg,
    Wish you could have been at the benefit on Wednesday, many who know you would have loved to see you and many (such as myself) who never have, would love to meet you… was wonderful to see your mom. There was so much Love electrifying the whole space! So glad to hear everyone is continuing to adjust…what else is there to do..right? ❤
    With our continued Love and Support,

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