Word from Connecticut is that the Bounce Back Jack benefit was a smash success! Supporters of our little man packed this whole place, a few hours after this picture was taken:
Hearing the names of the people who attended was like watching an episode of “this is your life”. So many friends from so many wonderful years. I so wish that I could have been there. (A note to readers- I would love to see some pictures of the event! If you took any that you would be willing to share with the world, please consider posting them in the comment section.) I think it is pretty certain that putting on the event took more effort, on a considerably shortened timeline, than planning a 300-person wedding. Thanks to the brilliant Sue Gomes of LHHS and Amy Humphries of the WPL, as well as MANY other businesses and individuals, I’m sure everyone who attended has a wonderful night to remember. We tremendously appreciate the financial assistance that the event generated for Jack.
Many people have been asking me to post the video that was shown at the event. It can be accessed here, (password bouncebackjack). While the words are mine, the film was created by one of my best friends, Jack’s Uncle Chad- photographer, author, and documentary filmmaker par excellence. I hope you all like it.
Jack is doing well now that he is home. He loves being able to go outside and roll around in his wheelchair/stroller (which Sam also loves to ride in), and to be a part of family dinners at night (though Mom and Dad do very little eating at dinner time these days). He’s done reasonably well tolerating three therapy sessions a day in the Nemours COR program. He’s tolerating tummy time much more, and he even used his arms and legs to “creep” around on a mat earlier this week, which he has not done since before the diagnosis. We have plenty of reason to hope that the weakness in his neck and trunk will resolve itself with enough hard work on Jack’s part. It’s pretty clear that an old friend (Sam) will have a key role to play here. Jack is fascinated by Sam’s crawling and climbing. He was motivated before… but it’s much more obvious now!
There is a lot more to report, and pictures to share, but that will have to wait for another day. Thanks again for following along, everyone!